PAT Meeting #28 01/08/2021
PAT Meeting #28 01/08/2021
7 UB Backbone Staff (Kassa Belay, Danielle Augustine, Dionne Grayman, David Harrington, Athenia Rodney, Briona Clark, Aileen Gonzalez)
17 PAT Members
10 FAB members
Share updates about ongoing projects
Meet Aileen Gonzalez, UB Early Intervention Ambassador
Discuss 2021 PAT member priorities
Part 1 of the opening reflection was a menti.com word cloud about emotions the group felt during the Georgia Senate run-off election results, before the riot
Answers included: hopeful, grateful, relief, blessed, excitement, overjoyed, validated, black, proud
Part 2 was a second word cloud reflection on emotions through Wednesday afternoon and evening during the riots at the Capitol
Horrified, disgusted, angry, anxious, tired, embarrassed, fearful, white privilege, determined, outraged, upset, infuriated, entitlement, worried
The group followed with a discussion on their disappointment with police response to the riots, specifically the difference between the treatment of the insurrectionists and the aggressive responses from police to peaceful protests during the black lives matter protest.
News and Updates
Review of last month’s PAT Meeting – December 2020
Reviewed UB’s new EI Ambassador position and discussed how PAT members can begin to offer and receive support
Discussed NYC Pandemic Recovery
Revealed service and information gaps
Recommendations for a successful 2021 pandemic recovery
Review of last month’s FAB Meeting – December 2020
We introduced the FAB to EY’s antiracism task force to begin partnering on the covid-relief small business grant
2nd FAB Fellowship
The job description has been shared and will focus on provider engagement
The selection process has been decided
Family Co-op Session II
Session II restarts tomorrow 01/09
20+ families gather virtually every Saturday for storytime, sing-a-long, and Parent Corner
Session II ends on February 13 and Session III begins on Feb. 27th
Registration for Session III will open in mid-January
Parents on the Session II waitlist will be given priority for Session II
Paul Levy, of the Brooklyn Public Library has visited both sessions and future session will include musicians, hair stylists, and the Carnegie Hall Lullaby Project!
Learning Landscapes & Books for Brownsville
Cards that can be easily placed throughout the home or taken on-the-go
Marlibox will include culturally sensitive crafts and materials to be paired with activity cards
UB held a roundtable with FAB members to develop and workshop the cards
Kristen Rocha Aldrich of Reach Out & Read, has partnered with UB to write the curriculum
UB is currently working through the final stages and requested PAT help with distribution
Early Intervention Ambassador
UB’s Early Intervention Ambassador began January 4th as the go-to person for EI in Brownsville.
The EI Ambassador will:
Educate families to reduce stigma about EI
Guide families through the EI referral Process
Liaise between families and service providers to support referrals and evaluations
Welcome EI Ambassador : Aileen Gonzalez
UB’s first EI Ambassador introduced herself, sharing her background and personal motivations
Aileen’s contact information
Call/text: (646) 535-4228
Aileen’s profile: https://www.unitedforbrownsville.org/aileen-gonzalez
Early Intervention Services Review
David reviewed the basics of EI
Who: Age 0-3 with disabilities or developmental delays
What: Federal entitlement to therapies and services
Where: Provided in a natural setting like home or daycare
When: As early as possible
Why: Prevent children from being left behind
How: A mandated process through the State and City DOH
Parents not required to use the service and must consent
EI does not pass on info to other programs without consent
EI Referral Process
If a delay or disability is detected or suspected in a 0-3 yr old
Anyone can refer, often a doctor, nurse, counselor/therapist, teacher, or parent
EI provides a Service Coordinator who contacts parents
An evaluation is conducted if a parent consents
Done by an evaluator who looks at the child’s overall development for delays in their native language
Covers physical, cognitive, social-emotional, and adaptive development
If child meets strict guidelines for delays
Ineligible children can be monitored and re-referred
Some conditions (i.e. low birth weight, disabilities, or surgery) are automatically eligible
If a child is eligible and parents consent, continues up to 3 years old
A state contracted provider performs services in the home, daycare, or another natural setting
PT, OT, speech therapy, counseling, assistive technology
Referral Process Takeaways
Kids drop off at each stage of the referral process
Black children are referred less often than white and Hispanic children on the City-wide level and even more so in Brownsville
Hispanic children are referred to EI at a comparable rate to white children City-wide but are over represented in Brownsville when compared to the City-wide levels
Black and Hispanic children have a lower rate of evaluation for EI in Brownsville when compared to City-wide levels
Black and Hispanic children have a lower rate of evaluation for EI once referred in Brownsville and City-wide
There is a large drop off between referral and evaluation for hispanic children in Brownsville in particular
Pre-pandemic “missing” referrals were estimated at 25-30 children in the 11212 zipcode per year
Aileen’s role will address the secondary drivers, affecting provider bias/racism and family engagement strategies as well as family misconceptions about EI, their role in it, and stigma
Q and A with Aileen
Naimah asked: How will Aileen approach African American community members about services while accounting for historical mistrust and trauma of the AA community within American medical institutions?
Aileen will use sensitive and careful language, taking her time to allow parents to come around through processing the information on their own time and always using a strength based approach that starts with parent/caregiver goals for their children
The group feels it would be seen by community members as a positive attribute that Aileen is not employed by any medical institution or state agency
Revere asked: What will Aileen’s outreach strategy be?
Build connections with agencies that service families in order to connect directly with families
Stephanie Ludwig of Nurse Partnership asks: How will Aileen address the lower quality of virtual evaluations ?
Evaluators should be properly prepared to ensure a distraction free setting and Aileen can help parents prepare for evaluations to optimize results and if invited, attend sessions with them
How do we react to children being denied services?
Provide worksheets, resources, programs, videos, and others at home activities to develop children in the meantime before another evaluation can be conducted
Parent’s deserve a second opinion and can be supported in pursuing them
What will Aileen do if parents refuse the referral?
Continue to reach out on regular basis
Encourage families to continue considering EI as an option
Suggest alternative or interim activities such as developmental monitoring
Will Aileen be able to provide videos and other forms of technology?
Yes, she is up to date on the latest technology
Georgina asks: Are they any HIPPA concerns?
Kassa says that there may be a situation where consent forms should be signed on a case by case basis but ultimately this is to be determined with client families and their providers
There should be preparation work and support before and during evaluation so that parents can be prepared
A vetted list of appropriate EI providers for Brownsville and a list of those to avoid will be developed by Aileen
Aileen will have access to the Bureau of Early Intervention at the Dept of Health and Mental Hygiene through UB
PAT Member Priorities
The group was invited to post ideas/responses to the following questions on a Padlet here: http://bit.ly/2021PAT
What are your programs top priorities for 2021?
Ex. Distributing resources such as books/toys to facilitate child development; Furthering strengthening opportunities to collaborate between service providers to better support families around remote learning and enrolling in helpful services such as EI
What challenges do you anticipate for 2021?
Increase in Covid rates delaying the return to in person visits
What new projects do you have on the horizon?
Which projects do you have on the horizon?
Which projects, priorities, and challenges would you like to collaborate on with other PAT members? How?
Riverdale Ave Community School partnership with alternative internet provider
Reach Out and Read workshops – Kristin can be contacted at email@example.com
What have you decided NOT to work or focus on in 2021?
Avoid the negative and focus on solutions
Aileen’s Profile: https://www.unitedforbrownsville.org/aileen-gonzalez
Register for an EI Ambassador informational interview: https://calendly.com/dwharrington/eiambassador
Send collaboration request
Where would you like collaboration from other PAT members on challenges and priorities you shared today?
Contact PAT members directly: https://groups.google.com/g/UBPAT
Copyright © 2021